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Maaike Asselbergs

Maaike Asselbergs I am 76. I have several chronic conditions, including heart arrythmias since early childhood, celiac disease, essential tremor disorder, and congenital GI dysfunction, which necessitated a colostomy in my forties. I am scheduled for major surgery to repair extensive abdominal herniation, resect my bowel and to create a new colostomy. After waiting seven months, I recently saw a new cardiologist. To make the most of the time, I prepared a one-page summary of relevant medical data. Her approach conveyed that she saw me as an anxious old woman. Questions or information I...

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Eileen and Daniel

Eileen and Daniel Daniel was diagnosed with Myalgic Encephalomyelitis* (ME) at 19 years of age. After a series of travel vaccines (including a live vaccine) and  what Eileen (mother)  eventually discovered just before Daniel died at 21 years old (2012),that his physical body was still compromised by a fresh water parasite that he ingested from drinking water from a high school camping trip a couple of years before.  One of his classmates, as a joke, purposely gave Daniel the untreated water that contained Giardia Lamblia. When Daniel was diagnosed he  was also transitioning from...

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